The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Sunday, November 7, 2010

Time is our gift

Today I listened to the webinar from Happy Child with Michael Grose. I must say something that struck a chord with me was the constant promotion of ME TIME.

This is so important that I feel I need to blog about it. 

Spending time for yourself or yourself and your partner should be a priority even before the kids at times. Remembering that this time has to be quality not just a rush job to get your hair done or nails painted before taxiing the kids from one event to the next. It should be dedicated time to "sit back and smell the roses" enjoying yourself. 

We should make sure that this time is purely our own, not limited to 30 minutes between serving our kids. Kids need to learn that parents and carers need a rest sometimes, which does not include being constantly hassled for this or that. Kids have to learn to be independent and do things for themselves sometimes. 

Never feel guilty about getting a sitter to care for your kids. It is actually a good thing to do. If you are constantly working for your kids you are going to burn out. Give yourself and your relationship with your partner the respect it deserves. We did not have children so we could forget about ourselves or our partner. We have them to share in the joy of our life. Life will change after we have kids but it does not have to end. 

Put yourself 1st sometimes and see how things change. If you are happy and content then you may find your kids and family life will be a reflection of you. 


No comments:

Post a Comment