The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Monday, November 8, 2010

Heres what I Can Do - I can be happy and successful!

So you have a child that is challenged and needs special assistance with many different things in life (I try not to use the term disability)

Sometimes parents, teachers, carers and peers miss what is most important to these kids.  I believe it’s time to look beyond what our children's weaknesses are and focus some attention on WHAT THEY CAN DO! 

Nurture this and praise them for their efforts. If we do this I believe our kids confidence will grow and then they may be inclined to climb other mountains and take on other challenges that they would not normally try. 

We could spend endless hours trying to teach our kids the things they find extremely difficult and get very disappointed with the results. Would it not be a great thing to see them achieve in areas of strength and build up that self esteem!!!! 

I do not proclaim to have an special qualifications when it comes to this other than being a mother of 3 gorgeous kids, one who is learning challenged. 

Unfortunately in our society we are constantly bombarded with things about IQ and tonight’s show on channel 9 is no exception. Rather than making families participate and find out who has a higher IQ, why don't we look at the achievements of everyone. 

I am going to use a phrase I have been using for months now 


Accept life is unfair, some people are born with disabilities or are challenged and we need to accept this fact . . Remember Newton could have complained about the Apple falling down the tree could hit his head...but instead he identified the Law of Gravitation and is now known as The Father of Physics,

Accept Failure, Understand behind every Success there is a Failure.

I am not saying don’t try to teach them things they find difficult or hard, I am saying give them a chance to be good or successful at something they can do, build self esteem and confidence and we may find that the things they can’t do may become things they can do because they may not be afraid to try them!!


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