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The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Australia
Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Tuesday, February 15, 2011

Parenting - Its a hard Job - Looking after yourself is harder!!

As parents we all know that looking after our kids is the hardest job we have ever had to do. However, in saying this I realise that whilst it is on the top of our list of the most challenging things we have ever done, the one thing we are not considering is the number one priority and no. 1 job that we should be considering. That is looking after ourselves.

As a mother of 3 kids, I find myself working 24hrs a day to make sure that they have all their needs met. I make sure clothes are washed, food is available on request, sports games are attended, homework is done, toys can be found and fixed and the list goes on.

Well what I am learning as I get older is that if I don't look after myself and give myself ME TIME or US TIME for my husband and I then no matter how much I do for my children, I may end up resenting the life I have worked so hard to create.

The lesson here is that make sure you look after yourself as a Number 1 priority.  I often hear the phrase by many husbands "Happy Wife, Happy Life" well I think they are 100% correct. If I am happy with my life and I am getting enough ME time to look after myself then I am happy to do all the things for my children that they need. The children will also feel much more relaxed and happy within their life.

Wednesday, February 2, 2011

World Rare Disease Day

World Rare Disease Day
28th Feb 2011
Vivo Cafe
388 George Street
Sydney NSW 2000
6.30pm to 8.30pm
$35pp includes cocktail food and drinks
or book online www.vcfsfa.org.au