The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Wednesday, December 15, 2010


Today I am writing about tolerance in the world. I read an article which spurred on a number of rants and arguements in facebook. The article was about whether children should be taken out to resturants or cafes with their parents. It went on to say that children disrupt others and that people with children should stay home or have coffee and meals at others homes. One comment was that Children should be seen and not heard!

I think the world needs to be more tolerant of others and understand that everyone has a right to go out. Not all children disrupt things. There are so many other things in this world to be concerned about.

I am a believer in discipline for children and that we should all learn to respect others as we grow up. What bothers me about this situation is that parents are being forced to hide from the public because they have children.

The sound of laughter and chatter of young children is a wonderful and innocent beauty. I am not saying that all kids are angels or that some don't need repremanding when they disturb others in cafes etc... What I am saying is that never judge a parent when a child acts out. Never judge until you have walked a mile in someone elses shoes.

More often than not when parents meet up at cafes with children in tow, it is usually one of the only times they get to go out and socialise and have some adult stimulation. In a world of so much pressure is it really necessary to condem parents who take their children out.

To all those selfish people who want to live in a world without children, maybe you should choose to stay home!

Wednesday, December 1, 2010

Supporting those who support us

Today my blog is about supporting others who support the VCFS 22q11 Foundation. We are very fortunate to have a number of people and companies that support us. Each and everyone of them is a wonderful and giving person or organisation. We have been affiliated with many of them for more than 5 years.

So I say to you, in a world full of take take take, its time to give! Give back to those who have given to us. Just a share or like on Facebook, or a small tweet on Twitter, a Digg on DIGG or book mark on stumble upon whatever your choice of social media one little word may help one of our wonderful supporters.

Here are some links to our supporters, if any of them can assist you in anyway I would personally recommend all of them!

Beautiful Soles

Boyd Design

Israel Smith Photographers

Tex Whitney Productions

Storage King

Mrs A in The Cove

If you want to know more about our foundation visit www.vcfsfa.org.au

Have a wonderful giving day!!