Today my blog is about supporting others who support the VCFS 22q11 Foundation. We are very fortunate to have a number of people and companies that support us. Each and everyone of them is a wonderful and giving person or organisation. We have been affiliated with many of them for more than 5 years.
So I say to you, in a world full of take take take, its time to give! Give back to those who have given to us. Just a share or like on Facebook, or a small tweet on Twitter, a Digg on DIGG or book mark on stumble upon whatever your choice of social media one little word may help one of our wonderful supporters.
Here are some links to our supporters, if any of them can assist you in anyway I would personally recommend all of them!
Beautiful Soles
Boyd Design
Israel Smith Photographers
Tex Whitney Productions
Storage King
Mrs A in The Cove
If you want to know more about our foundation visit www.vcfsfa.org.au
Have a wonderful giving day!!
Maria
I am dedicated to raising the profile of VCFS or Deletion 22q11.2 Syndrome. My lovely Charli has this syndrome and i want to help and support others.
WELCOME!
The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.
Supporters of VCFS
THe VCFS 22q11 Foundation
- VCFS 22q11 Foundation
- Australia
- Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.
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