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The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Australia
Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Tuesday, November 2, 2010

Oprah Sydney Meet Up gives VCFS exposure

On Monday night i had the great chance of giving VCFS exposure to almost 100 people who came together to discuss education in Australia. Thanks to Nancy Georges the organiser i was able to talk about VCFS and discuss the issues facing our kids at school. Oprah Sydney Meetup

With this new networking group I think the VCFS word will spread like wildfire.  On top of this our TV commercial featuring Lisa Wilkinson is still being aired on Channel 9 WOW!!! Great Work
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