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The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

THe VCFS 22q11 Foundation

Australia
Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.

Tuesday, August 9, 2011

VCFS 22q11 Foundation Conference Sydney 2011

2011 Conference & AGM
28th August 2011 , 9.00am
The Children’s Hospital Westmead
Lorimar Dodds Auditorium
                              
AGENDA

8.30am                Registration / Morning Tea

9.00am                Maria Kamper - President Welcome
9.10am                Laurie TaylorAGSA , What does AGSA do & Sibling workshop
9.30am                Tony J. Simon, Ph.D , UC Davis M.I.N.D Institute  -Integrating Cognition, Emotion & Psychiatry for Treatment in 22q11.2DS Via Video
10.00am              Dr Linda CampbellCentre for Brain and Mental Health Research University of Newcastle
10.30am              Madeleine Randell (Hons student) - "Attitudes to sexuality, relationships and parenting
10.40am              Emma Gallagher (Prof Doc Clin Psych student)- Depressive symptoms in adolescents with velocardiofacial syndrome as they transition into emerging adulthood"
10.50am              Lisa Phillips (M Clin Psych student) -"How do young women with Velo-cardio-facial syndrome view their personal relationships, sexuality and parenthood?"
11.00am              Brooke Sinderberry - (PhD candidate) "Resilience in children with chronic illness"
11.30am              Neil Nicoll – Behavioural Psychologist -  Social Skills
12.00                             AGM
12.15 pm              Lunch with the Experts
Meredith Wilson – Clinical Genetics Westmead Childrens Hospital
Neil Nicoll – Behavioural Psychologist


3.00pm                Kathy Angkustsiri, M.D., Behavioral Pediatrician, UC Davis M.I.N.D Institute -  Anxiety in Children with 22q11.2DS and its Effect on Functioning Via Video
3.30pm                Maria KamperVCFSEF 18th Scientific conference review
4.00pm                Afternoon Tea

Workshops
9.30am – 3.00pm        Sibling Workshop (children to join craft at conclusion of their workshop)
9.00am – 4.00pm        Craft/Activities Workshop

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