I am dedicated to raising the profile of VCFS or Deletion 22q11.2 Syndrome. My lovely Charli has this syndrome and i want to help and support others.
WELCOME!
The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.
Supporters of VCFS
THe VCFS 22q11 Foundation
- VCFS 22q11 Foundation
- Australia
- Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11. VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome VCFS is the most common genetic syndrome associated with cleft palates VCFS is the second most common genetic syndrome associated with congenital heart defects 99% of the VCFS population will have a learning difficulty or disability 30% of the VCFS population will develop a mental illness VCFS has more than 180 annomolies associated with it The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.
Friday, April 8, 2011
VCFS 22q11 Foundation: 1/2 Marathon for kids with VCFS
VCFS 22q11 Foundation: 1/2 Marathon for kids with VCFS: "This year we not having a fundraising dinner for VCFS, however we do have a fantastic guy/ parent of a VCFS child who in the past 3 ye..."
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