Treadmill for 22q

On the 25th August 2011 a very special person will be taking to the treadmill in her local gym to raise awareness of VCFS/22q11.2 Deletion Syndrome. @carolinedwyer found out her daughter had 22q only recently. Her daughter is 13 years old.

Our website http://www.vcfsfa.org.au/ will soon have details of how you can sponsor or donate to Carolines treadmill walk. All money will go towards the VCFS 22q11 Foundation.

We will also soon have wrist bands to support this cause as well.

If you have any prizes you could offer as a donation towards the raffles Caroline will be holding during this walk please contact the foundation.

It is so great to see so many people taking the challenge to raise awareness of 22q and VCFS.

It is the 2nd most common genetic syndrome in teh world but still so many  parents are waiting so long to get a diagnosis. We need to bring this syndrome to the pulic arena and help others who have not been diagnosed

22q at the Zoo 65 Cities

If you are a part of the VCFS/22q11 community it would have been hard for you to miss out on all the hype that has surrounded the last 24 hours across the world in relation to VCFS/22q11.2 deletion/DiGeorge/Shprintzen Syndrome etc..

In 65 Cities and in more than 13 countries spanning 3 continents thousands of people joined in the campaign to raise awarenss of 22q11.2 Deletion Syndrome. The second most common genetic syndrome in the world!!!

This initiative began as a local awareness campaign organised by the International 22q Foundation, the 22q and You Center and The Dempster foundation, however with social media it has become a phenomenom for all those affected by 22q11.2 Deletion

It really doesn't matter what organisation you are a part of, support, rely on etc...  This day has proven that we are a community. A community of medical professionals, patients, celebrities,  families, educators, not for profit groups and support groups.

Our qualifications, prestige, celebrity, income and demographics were pushed aside for the first time and we were all equal and joined in our reasons for being a part of this day. That is to RAISE AWARENESS OF 22q 11.2 DELETION SYDNROME.

Lets keep this rolling, lets continue to be united as one, lets forget the arguments about what it should be called, lets put our egos aside, lets learn from each other!!!!!!!

We are all in this together that is for sure. Lets remember the saying

"UNITED WE STAND DIVIDED WE FALL"

Congratulations to each and every member of the VCFS/DiGeorge/Shprintzen and 22q community.

Maria